For Patients get involved with Research at the cng
Our scientific discoveries are built on involving patients in every aspect of our research. Your experience with the disease informs our approach, your donations help us better understand their impact & design treatments, and your participation in clinical trials drive forward treatment options.
Get involved in research
We offer several ways to get involved in research studies and clinical trials. If you or a loved one would like to join us in the fight to combat neurodegenerative disorders, including myotonic dystrophy, ataxia, amyotrophic lateral sclerosis (ALS), Huntington's disease, and neuropsychiatric disorders, please consider volunteering for a study or trial.
The generous gift of brain donation helps researchers to understand the disease changes and determine effectiveness of therapies on the disease process.This allows people to contribute for many years after their death.
Looking for an simple way to contribute to scientific research without joining clinical trial? One incredible way to help move research forward is to donate tissues, such as blood and skin cells, to our biospecimen collection.
Disease Focus Areas
ALS, or Lou Gehrig’s disease, is a progressive nervous system disease that affects nerve cells in the brain and spinal cord, causing loss of muscle control.
Myotonic dystrophy is part of a group of inherited disorders called muscular dystrophies. Although it is the most common form of muscular dystrophy, it also affects many other body systems, including the heart and brain.
SCA is one of a group of genetic disorders characterized by slowly progressive incoordination of gait and is often associated with poor coordination of hands, speech, and eye movements.
HD is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities usually during their prime working years and has no cure.
Alzheimer’s Disease (AD) is the most common cause of dementia in the elderly; beginning with subtle memory loss and progressing relentlessly. AD ultimately involves higher cognitive functions, leading to complete incapacitation and death.
The field of neurogenetic diseases, is constantly growing and evolving. Other diseases of interest to CNG faculty include Alzheimer’s disease, neuropsychiatric disorders, cancer, macular degeneration and many more.