For Patients get involved with Research at the cng

Our scientific discoveries are built on involving patients in every aspect of our research. Your experience with the disease informs our approach, your donations help us better understand their impact & design treatments, and your participation in clinical trials drive forward treatment options.

Get involved in research

Clinical Trial Involvement

We offer several ways to get involved in research studies and clinical trials. If you or a loved one would like to join us in the fight to combat neurodegenerative disorders, including myotonic dystrophy, ataxia, amyotrophic lateral sclerosis (ALS), Huntington's disease, and neuropsychiatric disorders, please consider volunteering for a study or trial.

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Brain Donation Program

The generous gift of brain donation helps researchers to understand the disease changes and determine effectiveness of therapies on the disease process.This allows people to contribute for many years after their death.

Hand shows the brain in the sun and sky.

Disease Focus Areas

Myotonic Dystrophy

Myotonic dystrophy is part of a group of inherited disorders called muscular dystrophies. Although it is the most common form of muscular dystrophy, it also affects many other body systems, including the heart and brain.


Huntington Disease (HD)

HD is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities usually during their prime working years and has no cure.

Fundamental Laboratory Research

Alzheimer’s Disease

Alzheimer’s Disease (AD) is the most common cause of dementia in the elderly; beginning with subtle memory loss and progressing relentlessly. AD ultimately involves higher cognitive functions, leading to complete incapacitation and death.

brain Cells dyed with shades of purple