For Patients get involved with Research at the cng

Our scientific discoveries are built on involving patients in every aspect of our research. Your experience with the disease informs our approach, your donations help us better understand their impact & design treatments, and your participation in clinical trials drive forward treatment options.

Get involved in research

Clinical Trial Involvement

We offer several ways to get involved in research studies and clinical trials. If you or a loved one would like to join us in the fight to combat neurodegenerative disorders, including myotonic dystrophy, ataxia, amyotrophic lateral sclerosis (ALS), Huntington's disease, and neuropsychiatric disorders, please consider volunteering for a study or trial.

Emily plowman

Brain Donation Program

The generous gift of brain donation helps researchers to understand the disease changes and determine effectiveness of therapies on the disease process.This allows people to contribute for many years after their death.

Hand shows the brain in the sun and sky.

Blood and Tissue Collection

Looking for an simple way to contribute to scientific research without joining clinical trial? One incredible way to help move research forward is to donate tissues, such as blood and skin cells, to our biospecimen collection.

empty vials awaiting blood samples

Disease Focus Areas

Amyotrophic Lateral Sclerosis (ALS)

ALS, or Lou Gehrig’s disease, is a progressive nervous system disease that affects nerve cells in the brain and spinal cord, causing loss of muscle control.

young asian adult son chatting with wheel chair bound father outdoors in park

Myotonic Dystrophy

Myotonic dystrophy is part of a group of inherited disorders called muscular dystrophies. Although it is the most common form of muscular dystrophy, it also affects many other body systems, including the heart and brain.


Spinocerebellar Ataxias (SCAs)

SCA is one of a group of genetic disorders characterized by slowly progressive incoordination of gait and is often associated with poor coordination of hands, speech, and eye movements.

scans of lab images

Huntington Disease (HD)

HD is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities usually during their prime working years and has no cure.

Fundamental Laboratory Research

Alzheimer’s Disease

Alzheimer’s Disease (AD) is the most common cause of dementia in the elderly; beginning with subtle memory loss and progressing relentlessly. AD ultimately involves higher cognitive functions, leading to complete incapacitation and death.

brain Cells dyed with shades of purple

Novel Repeat Expansion Diseases & Other Diseases of Interest

The field of neurogenetic diseases, is constantly growing and evolving. Other diseases of interest to CNG faculty include Alzheimer’s disease, neuropsychiatric disorders, cancer, macular degeneration and many more.

brain Cells dyed with shades of blue