Partner Organizations

The ALS Association

The ALS Association is an American nonprofit organization that raises money for research and patient services, promotes awareness about and advocates in state and federal government on issues related to amyotrophic lateral sclerosis, also known as Lou Gehrig’s disease

the als associations logo

HD Society of america


The Huntington’s Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their families.

Logo for the h-d society of America

Muscular Dystrophy Association

MDA is leading the fight to free individuals — and the families who love them — from the harm of
muscular dystrophy, ALS and related diseases that take away physical strength, independence and life.

logo: M-D-A

Myotonic Dystrophy Foundation

The Myotonic Dystrophy Foundation is dedicated to enhancing the quality of life of people living with myotonic dystrophy and to drive research focused on treatments and a cure. 

Myotonic Dystrophy Foundation logo

National Ataxia Foundation

NAF is a membership supported nonprofit organization established in 1957 to help persons with Ataxia and their families. The Foundation’s primary purpose is to support Ataxia research, provide vital programs and services for Ataxia families, and help in the search for a cure.

National ataxia foundation logo

Target ALS

Founded in 2013, Target ALS is a 501(c)(3) medical research foundation committed to the search for effective treatments for Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s disease.

Logo: Target A-L-S

Packard Foundation

The David and Lucile Packard Foundation works with partners around the world for social, cultural, and environmental change designed to improve the lives of children, families, and communities.

logo: The David and lucile packard foundation

Promise to Kate

The Promise to Kate organization was formed to help fund research for Myotonic Muscular Dystrophy, Wolfson Children’s Hospital and MDF Family support.

promise to kate

Hannah Shades of Purple

Besides spreading her special brand of joy through out the south west , Hannah and her dad also educate people about spinocerebellar ataxia and raise money towards developing greater understanding of these devastating diseases, and eventually cures for them

picture of a person walking with walker on a cloudy day

Community Foundation of North Central Florida


Since 1997 the Community Foundation of North Florida has helped donors create charitable funds and leave philanthropic legacies that support the causes they cherish.

Community Foundation of North florida

Marigold Foundation

The mission of the Marigold Foundation is to ease the financial burden of bereaved parents and of parents who are seeking treatment for their child’s medical condition.

marigold foundation

Chan Zuckerberg Initiative

The Chan Zuckerberg Initiative helps solve some of society’s toughest challenges — from eradicating disease and improving education, to addressing the needs of our local communities. Their mission is to build a more inclusive, just, and healthy future for everyone.

CZ logo