Hannah’s Shades of Purple Tour
Hannah and her family have been involved with the Center for NeuroGenetics for over five years and families like her’s are a main driving force behind what we do at the Center. Our friend Hannah has a very rare neurodegenerative disease called spinocerebellar ataxia type 8, or SCA8. Her happy disposition and positive outlook on life in the face of adversity are what motivates us to do all that we can to find a treatment or cure for SCA8 and other neurogenetic disorders. In typical Hannah fashion she is showing us how to live life to the fullest and inspiring us to keep our research moving forward.
For 3 weeks in the fall of 2016 Hannah and her father Michael traveled across the southwestern United States to visit many of the amazing National Parks. In addition to spreading her special kind of Hannah joy and seeing amazing sights, she and her father are using this trip as an opportunity to educate people about ataxia and other neurogenetic diseases. They are also raising money that will go directly towards research being done on this devastating disease with the end goal of creating therapies and cures. We are very thankful for Hannah and her never ending adventures and we are very grateful that she and her family are choosing to support the research here at the Center for NeuroGenetics.
- You can see follow Hannah’s adventures on Facebook by clicking here: Hannah’s Shades of Purple Tour
Hannah’s Shades of Purple Tour has raised over $19,950 for research on Ataxia.
You can also donate by check to the following address:
Center for NeuroGenetics
Hannah’s Shades of Purple Fund
c/o Dr. Laura Ranum
PO Box 103610
Gainesville, FL 32610-3610